zestfive: (Default)
[personal profile] zestfive
So I think that P might have fibromyalgia. My sister has it and because of all of her health issues, I'm begining to think she has is. She has the following issues and some more lately:

Really bad joint pain
excessive sleeping (think 12 hours a day)
sleep apnea
restless legs
IBS
jaw pain
migraines
brain fog
depression
weight gain
anxiety
ADHD

I'd normally ask my sister what the next step on dealing with this but she is in Uganda for the next few weeks. Anyone know how you would handle this? I understand it can take up to 10 years and 10 different doctors to finally get a diagnosis, What would you do? Do you know any good doctors in Minnesota? She has been going to a chiropractor (applied kinesiology) and is scheduled to check out an accupuncturist this week. I think we should also look at it from a traditional medical point of view. 

She's concerned that I'm going to get tired of her medical issues and leave her. She claims (I know it's her fears talking and is really not reality) that all her other gf's left her because of this).

Any one know any good doctors or what type we should see?

THANKS in advance!

Date: 2007-06-20 12:17 pm (UTC)
From: [identity profile] cluelessinchi.livejournal.com
Oh I must be so slow... I had already thought that P had a diagnosis of Chronic Fatigue Immune Dysfunction (CFIDS)I go to a chiropractor and she does wonders for me. As long as an MD has a working knowledge of pain and especially fibro related pain they can treat fibromyalgia. I also have heard/read many horror stories about people getting so many meds that they could not function. I was treated by a Rheumy and all they wanted to do is give me anti-depressants that actually caused depression becuase I was a zombie on the medication. Most people with fibro also have a diagnosis of depression but some have major neurological issues... I fall into the later group. I also have CFIDS. (over active and under active immune system at the same time is a sure indicator)

Date: 2007-06-20 02:58 pm (UTC)
From: [identity profile] zestfive.livejournal.com
weird, this comment didn't show up for me until I looked into the post.

I think I'm most concerned with her passive way of dealing with doctors and the chance she might find a doctor who doesn't think that FM is a "real" disease.

Date: 2007-06-20 03:06 pm (UTC)
From: [identity profile] cluelessinchi.livejournal.com
Some old school doctors who have done any research think that... my old MD did. He said that he did not "believe in" fibro. I thought that was crazy since there is so much new information out there. Also one can interview doctors to see if they have the qualifications necessary for treating people. I have seen the web sites for hospitals and they can give detailed information on a specific doctor and their fields of specialties. Some even put the doctors interests.. like they like to run. Too much information if you ask me... Take care and good luck!

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